The Municipal Corporation of the City of Totana will carry out tomorrow a simple act of visibility, together with the Board of Directors, professionals and volunteers of the Association of Rare Diseases "DÂ´Genes", prior to the ordinary plenary session, on the occasion of the celebration of the World Day of Rare Diseases, celebrated this February 29.
In addition, the corporate will also discuss during the February session the joint motion to agree on municipal accession to the Institutional Declaration on the occasion of World Rare Disease Day 2020, promoted by the Spanish Federation of Rare Diseases (ERDF).
This proposal advocates supporting each and every one of the claims, demands and values â€‹â€‹contained in this Institutional Declaration that revolve around research, social transformation and direct attention through services.
In addition, it is requested to urge the Ministry of Health and the Ministry of Health to implement all the actions contemplated in this Institutional Declaration and that contribute to the improvement of the quality of life of people and families living with rare diseases in Spain.
This February 29 is celebrated the World Day of Rare Diseases, which are those pathologies whose prevalence is below 5 per 10,000 inhabitants;
which, considered one by one, affect very few people, but taken as a whole, involve a large part of the citizenship.