The sixth edition of the Velada por las Lipodistrofias, organized by the International Association of Relatives and People Affected by Lipodystrophies (AELIP), will take place in the Plaza de la Balsa Vieja in Totana next Saturday, April 13.
This solidarity act has been presented by the president of AELIP, Naca Eulalia Pérez de Tudela;
the vice president of this entity, Presentation Martínez;
the president of the Illustrious Cabildo Superior de procesiones de Totana, José Ramón Peñalver;
and the mayor of Totana, Andrés García Cánovas.
Both institutions collaborate with the event, which is part of the events commemorating the World Day of Lipodystrophies that was held on March 31.
This activity is scheduled at 8:30 p.m. in the Plaza de la Balsa Vieja and will include the reading of a decalogue with the main demands and needs of the people who live with these pathologies.
The activity will have the participation of seven bands of cornets and drums and the attendance of presidents or representatives of almost all the fraternities and brotherhoods of Totana.
The president of AELIP explained that they will be available to people who want to collaborate candles at the price of 2 euros, which will form the initials of AELIP.
Naca Eulalia Pérez de Tudela encouraged neighbors and visitors to join this event, which will allow visibility to lipodystrophies and showed their gratitude to all the bands and fraternities that will participate.
For his part, the president of the Cabildo thanked for having had the Holy Week of Totana for this event and encouraged the neighbors to show their solidarity with lipodystrophies and provide a grain of sand among all to support people suffering from these pathologies
Finally, the mayor recalled the solidarity of the people of Totana and praised the work developed since its constitution by the association AELIP to improve the quality of life of people affected by lipodystrophies and to encourage research.
The first mayor invited the people of Totana to go on Saturday and get the square filled with candles as a symbol that "the more candles are lit more lights of hope will light for families who live with these rare diseases."