Murcia.com - Noticias de Murcia

The Municipal Corporation will carry out a symbolic act of support for the D'Genes Association before the next regular plenary session in February

Source:

Coinciding with the World Day of Rare Diseases

The Municipal Corporation of the City of Totana will stage a symbolic act of support and solidarity with the D'Genes Association next Thursday, February 28, minutes before the start of the regular plenary session corresponding to this month coinciding with the celebration of World Disease Day Rare, that takes place precisely this day.

The Totana corporate will pose, along with representatives of this entity, with a banner with the theme "Rare diseases: a comprehensive challenge, a global challenge" that the Spanish Federation of Rare Diseases has designated this year to commemorate this date and raise awareness the society on the sociosanitary reality of the infrequent diseases.

In addition, the mayor and the spokespersons of the three municipal groups and the non-attached mayor will read an institutional manifesto to support research and improve the quality of life of patients.

The D'Genes Association is made up of people affected by an infrequent disease, family members and professionals of various fields with the purpose of creating a space of solidarity that also serves as an exchange and coexistence among the interested parties, as well as promoting the dissemination and awareness of the problem. of public health that these pathologies suppose.

Its main objective is to undertake actions that contribute to improving the quality of life and life expectancy of those affected and their family and social environment.

noticia
The Municipal Corporation will carry out a symbolic act of support for the D'Genes Association before the next regular plenary session in February, Foto 1

Comment this news on Facebook

If you want to comment on this news to the administrators of Totana.net, fill out the form below:

Send notification Code: 2021423
The owner of the personal data, collected in this form, expressly authorizes Alamo Networks, S.L. to treat said data in a computerized way and to be able to incorporate it into your database. The user may exercise the rights of access, rectification, cancellation and opposition of their personal data, in the terms established by the LOPD, at the address set in C / Alamo 8, 30850, Totana (Murcia). For your convenience you can also exercise your rights by email at the address info@totana.net
This website uses cookies to facilitate and improve navigation. If you continue browsing, we consider that you accept its use. More information