The events planned to mark the World Day for Rare Diseases, held on Saturday February 28 and have been organized by the Association for Rare Diseases and Developmental Disorders Graves "D'Genes" began yesterday with the opening of the photography exhibition "Rare diseases are full of life" shows that it is located in the municipal exhibition "Gregorio Cebrián.
The opening ceremony was attended by the Mayor of Totana, José Martínez Andreo, accompanied by the Councillor for Health, Trini Cayuela, and the president of "D'Genes", Naca Pérez de Tudela, and dozens of people linked to the association.
The activities organized by the Association for Rare Diseases and Developmental Disorders Graves "D'Genes" Totana in collaboration with the departments of Health and Social Welfare will be held throughout the week, which began yesterday morning with the implementation of an awareness campaign the Hospital Rafael Mendez (Lorca) which continues today in the Hospital "Virgen de la Arrixaca" (Murcia), Faculty of Medicine of the University of Murcia and tomorrow the association placed an information booth in the Weekly market and las19 Totana: 00 hours scheduled a talk at the cultural center of Aledo.
On February 27 at 12:00 pm will proceed to the reading of a manifesto for rare diseases at the front door of the City of Totana.
And at nine o'clock at night, will be held in the Performing Arts Board of the town, a theater of solidarity, which will be borne by the Theatre Company of Aledo, the profits will go to "D'Genes."
Finally, for the February 28, have organized the "Regional Workshop III for Rare Diseases, which will include the participation of speakers who specialize in this type of pathology, to be held from 18:00 hours in the Municipal Exhibition Hall "Gregorio Cebrián, and at night, from 21:00 pm there will be a gala dinner to commemorate the first anniversary of the association, in the restaurant Pedro Miras.
Entries, both the theater and dinner can be purchased at the Center Sociocultural "Jail" or by members of the board of the association or by calling 696 141 708.
