Over 200 people participated in reading the manifesto of the World Day for Rare Diseases, organized by the Gene D'Totana and the Spanish Federation for Rare Diseases, held yesterday at the Plaza of the Constitution in Totana.
During this act, the actor of Red Eagle, Guillermo Campra, who also attended the joint dinner where prizes were awarded to the association, was asked to read the manifest.
In addition, delivered gifts to children and released doves.
Today, on World of Rare Diseases, is performed at the Faculty of Medicine a talk in conjunction with the exhibition "Rare diseases are full of life."
Also, on 3 March will present the Awards of the Spanish Federation in the Senate and Princess Letizia Ortiz will be responsible with the Minister of Health, Leire Pajin, which will honor individuals or organizations that carry out important work with the Association.
Thus, according to Carrión will distinguish the figure of Dr. Murcia, Encarna Guillén, who has led the association since its inception D'Genes.
See story:
http://www.murcia.com/region/fotos/2011/dia-mundial-enfermedades-raras/
