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 The IX Solidarity Route for Rare Diseases, between the municipalities of Totana and María, will be held on June 16

The Association of Rare Diseases D'Genes, the International Association of Relatives and Affected Lipodystrophies (AELIP) and the Peña Barcelonista de Totana have organized the IX Solidarity Route for Rare Diseases, which will take place on June 16 between the municipality of Murcia of Totana and the Almeria of María.

The day also has the collaboration of the Spanish Federation of Rare Diseases (FEDER), the municipalities of Totana and Maria, Quad Action, Classic Vehicles Association Totana, Motoclub Blasts Totana, Custom Totana, Custom Alhama, Club Vespa Totale, Club Vespalia Murcia and Peña Barcelonista Totana.

After registration, which will be held at nine o'clock in the morning in the Plaza de la Constitución de Totana, the participants will depart at 10:00 am to the Sierra de María, where the arrival is expected around 12:30.

There, from 1:00 pm, participants can enjoy a barbecue lunch lunch.

The price of the inscription, which includes lunch-barbecue in the Sierra de María, has been set at 5 euros for children and 10 euros for adults.

For registration and early sale, interested parties should contact the Rober Moto establishment in Totana or the Multiaccidic Center "Celia Carrión Pérez de Tudela" in this same municipality. They can also contact to make the registration through the email info@dgenes.es or info@aelip.org, or also on the phone numbers 696 14 17 08, 968 07 69 20 and 692 39 78 40. In addition, a form to register online has been enabled: https: //goo.gl/forms/ liXWivbFdAer8cdH3.

The registration deadline will be June 10.

noticia

 
The IX Solidarity Route for Rare Diseases, between the municipalities of Totana and María, will be held on June 16 - 1

13/5/2019 Source: Dgenes

 

Tour Guide Translated by Kelly Hayes & Alison Rose Lesser // News Translated by Totana.com
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